The sad news was announced by Robert in a blog post on the website for The POLG Foundation, a nonprofit foundation founded by Frederik's family after his diagnosis in 2016.
"It is with a very heavy heart that my wife and I would like to inform you of the passing of our son, The POLG Foundation Founder and Creative Director, Frederik," began the message. "Last Friday, February 28th, on 'Rare Disease Day', our beloved son called us in to his room to speak to him for one last time."
He went on to share Frederik's last question to him, "Papa, are you proud of me?" with Robert sharing, "The answer was very easy, and he had heard it oh so many times…. but at this time, he needed reassurance that he had contributed all that he possibly could in his short and beautiful existence and that he could now finally move on."
Frederik died on March 1, in Paris, France. A fan page for the Luxembourg royal family also shared the news of his death and part of Robert's tribute on social media.
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Currently, the condition is "very difficult to diagnose and has no treatments much less a cure." The POLG Foundation is working to find therapies, treatments, and hopefully a cure to help those suffering from the disease.
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