Greater understanding and awareness of rare, genetic diseases stressed in UAE ...United Arab Emirates

Dubai: Understanding and dealing with rare diseases, esepcially genetic conditions, remains a huge challenge, even as it necessitates constant research and novel ways of treatment, a top health care expert has underlined. In an exclusive interview with Gulf News, Dr Maryam Mohammad Al Matar, founder and chairperson of the UAE Genetic Diseases Association, answered a range of questions of rare diseases and how to identify them: What is a rare disease? A rare disease is a health condition that affects a small number of people compared with other prevalent diseases in the general population. To date, 8,000 distinct rare diseases have been documented, of which 80 per cent have a genetic compone

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