‘We are desperate to try anything’ — NYC woman paralyzed from ALS pushes lawmakers to take action on horrific disease with 100% mortality rate ...Middle East

“I can’t eat or swallow and have a feeding tube. I can’t speak any more and rely on an eye-tracking computer to communicate. I can’t move anymore and need 24/7 nursing and home healthcare. I depend on a ventilator to survive,” said Mayuri Saxena, 36, of Flushing, Queens.

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